It’s hard too believe it’s been 5 years , although 2020 has been a very strange year where time stood still and flew by all at the same time. 2021 marks the fifth anniversary of my brain injury , resulting in permanent brain damage. It is the fifth anniversary of the new me.
For people new to this blog and who missed my earlier writings on the subject , a small summary. 5 years ago I had an inflammatory reaction in my brain and after a recovery period this resulted in permanent damage.
What does that entail. Problems with my speech, as in putting strange words in sentences and incoherent speech. Short and long term memory problems. My brain doesn’t make the distinction between useful and unuseful information anymore so everything comes all at ones. Reading is sometimes an issue and movement as well.
After a period of recovery and trying to regain as much of the old me as possible I am now at the point of acceptance , knowing that improvements will probably not be there anymore.
Despite it being pretty obvious from the start that a full recovery wasn’t in the cards for me. I have always been trying to find a way to do just that. Consciously or subconsciously.
And where planning and resting are very important pieces of the puzzle and they work for most of the time there are periods that nothing works. Whatever you do you will be fully confronted with the brain damage. And the only thing left to do is take rest and ride it out. The good news is better days will come. There will be a moment when the system and rhythm will do their work again. I used to try and stretch the limits as soon as such a run was over I now just enjoy the benefits of having a good run.
That said it’s will always be hard not functioning on a ‘normal’ level , whatever that is, and admit that your wheels simply spin slower that the rest of the world. It has given me great inside in what I can and cannot do. How far I can push things and know when to stop. It’s not an exact science , believe me I have tried making it one, so planning and resting a certain way does not always give a steady result. It comes and goes in waves. The limit is not a clear line in the sand and sometimes I find myself on the other side of it. And it can be frustrating at times. You can go overboard and do to little and just do laps in your head.
I am very happy with all the things I still do, work that suits me and hobby’s I can practice. I fully realize how fortunate I am , as one doesn’t get a second run after such a run in with your health , it’s not everyone’s fortune.
It’s a strange place we all find ourselves in at the moment, and knowingly or unknowingly we all run into our limits. And like many others , I was not in the habbit of talking a lot about my state of mind. But talking really helps, someone who listens is helping. So if you find yourself in a bind, mentally or otherwise, find someone to talk to , ask for help. Or write , get it out, and maybe share it later. It really helps.
